Posts

The Second Child

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I'm Pregnant!
Pregnant... with worry and thinking things over. I got you there for a second! Ahahahahaha!
Shame on you for thinking otherwise!
Now I have your attention, I want to talk about special mamas and having another child. Having a another child is a constant battle in one's head, especially when you have your first child that has addtional/special needs.

People talk a lot and also have all sorts of reasons for the whys and when you should do it, but at the end of the day it is completely up to you.

It's a scary road, thinking of trying again, will I get pregnant? do I want another child? What if I have another child with special needs? Can I cope? Am I mentally and physically ready for another rug rat?

Societal Pressure
Pressure pressure pressure! Well I don't feel pressure but people seem to be asking me when the next one is coming. When the next what? Train? Bus? lol Allow me to be sarcastic for a moment. When you give birth, after six months of pushing…

Pondering Over the 3 Years

Today we Celebrate Giovanni for Turning 3 !!!
It has not been easy: full of ups and downs, high and lows, joy and sadness, excitement and depression. We've had our bad days and our good days, all the same I still wouldn't change it for the world.
I wake up every morning and while Gio is sleeping I admire him: sweet; innocent, couldn't harm a fly and most of all BLESSED! He's been such a blessing to me! We have experienced so much grace because of this little boy of ours.
Experiencing that Mother-Son bond has made me speak out for the rights of my child and other children alike. I've become a real mama bear, ready to fight for him and protect him from any stigma or nay sayers.
The passed three years and in fact even during my pregnancy, I've learned a lot: 
Give Thanks I think we all go through the why me phase when something bad happens to us. I have learned to give thanks to God regardless of the situation. I used to cry a lot the first 6 months when he was …

Invisible Boundaries...

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Self Liberation

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***I am Not Perfect, in Fact I'm Far From It ***
Being a special needs mother has taught me a lot and I would like to encourage other mothers to keep going. It's sad to see a mother fed up, discouraged, dishevelled and drained. I always come across a few and I also get down sometimes but it never lasts long. I always want to portray positivity and good energy. 
A few tips I would like to share that I have learned and I'm still learning through this journey of being a mum to a child with special needs, and I hope it will encourage all other mothers out there who feel discouraged, worn out or neglected. 

Be at Peace With Your Situation
The first thing is to accept your child's condition. It's not easy at the beginning but with the right support, it should be ok. People think accepting the condition means you've given up on God. It simply means you are at peace with yourself and your situation and you've left it in the hands of God. I know people that don't e…

When Gifts Come Wrapped Differently

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I don't think I've ever taken the time to discuss the mini challenges we face as a family with a child with cerebral palsy and these things may seem trivial to others but they are actually things we have to put a lot of thought into.

The things you probably do not have to think twice about every morning, is a full blown migraine for some of us. So I'm about to share the nitty gritty stuff, the tips may help you understand life with a child with special needs and maybe even push you to be a little proactive:


Birthdays
This is usually a no brainer for most parents with regular kids, but for us special parents especially in a developing country, organising birthdays can be a huge challenge. In my case, doing a party with loud music and older kids running around is a huge no no. The loud music can cause seizures and make Giovanni very uncomfortable. Bouncy castles won't be beneficial to him but only guests. He basically won't enjoy himself. He however likes story time,…

Jumping hurdles, falling down, getting back up

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I am part of a group called the Special Mothers Project. It's a support group for parents who have children with cerebral palsy. The name stems from the fact that it started out as only mothers, but gradually the fathers have also come on board. We have a whatsapp group where we have a total of 67 parents that have children with cerebral palsy, we keep increasing in number.
Gathering from my experience and the experiences of other parents on this group that I have met and spoken with, these are some of the many challenges that parents of children with cerebral palsy face:

Stigma STIgma STIGMA (community and church)
I recently shared a story on my facebook wall about a lady who has 4 children with special needs who is struggling financially and emotionally. Her community have decided to ostracise her, called her a witch and believe she is cursed. Another story is of one of the mothers being called by her pastor to stand in front of the church to apolgise to the congregation for br…

World Cerebral Palsy Day: Dedication to Special Needs Mamas!

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On this World Cerebral Palsy Day 6th October, I want to encourage all mothers of children with cerebral palsy to always have hope, think positive and never give-up!


To you that they told your child will not live for long,

to you that go in and out of hospitals trying to find the right treatment for your child,

to you that you're the first to diagnose your child before the doctor even opens his/her mouth 😂, (I'm guilty)

to you that when you're bathing, you constantly have to keep the door open and peep in to your child because he/she cannot be left alone so in case he/she has a seizure you can run out of the shower with soap all over your body,

to you that always have to explain to people how to hold your child because (s)he is different even if they get offended by it, (who cares?)

to you that some days nobody can hold your child because he's just not doing good and you don't want to take that risk of giving him to someone else,

to you that have to brave the day …