Giovanni's World!

When a mother gives birth, the new born baby is a joy to see and it's a blessing to have kids. Having a special needs child I believe is more than a blessing, it's a privilege, they are God sent. Just like everybody else, but even more so, they are here for a purpose and a specific calling: to influence the lives of others, to touch people and in a different way. They are truly, God's jewels. God's special gifts. They tend to be very fragile both emotionally and physically. Which means if they fall sick, it can be very serious. Giovanni has been sick for the passed few weeks. You see it's very different when a special needs child falls sick. They are more fragile and sometimes more prone to infection, this means when Giovanni gets sick, he gets really really sick and trust me it isn't great. I wish people would just wash their hands before touching babies? I mean you've come to visit Giovanni and you're from church, you have shaken a few ha...

At 3 days old, Giovanni was diagnosed with two rare conditions: microcephaly and craniosynostosis after a CT scan. His sutures appeared closed and his head was abnormally small according to the doctors. And so this is where our journey began, of seeing doctor after doctor, specialist after specialist, trying to find exactly what was wrong with my baba. After seeing several doctors in Ghana, who confirmed what the CT scan showed, we raised money and flew to South Africa thinking we were going to do surgery to open up his skull, only to be told by the doctor something different. Something we weren't expecting at all. At 10 weeks old Giovanni had a MRI scan in Cape Town, South Africa and the doctor told us mysteriously that Giovanni did NOT have craniosynostis like we had thought but confirmed it would be more of a neurological problem that couldn't be corrected by surgery. After the trip to Cape Town, we came back to Ghana even more baffled about Giovanni. I knew something...

The sleepless nights you have: because he can't sleep, you also can't sleep. He doesn't eat, you also don't eat. He's frustrated, you're also frustrated. Physically and observing him during the day, there seems to be nothing wrong, but you know he isn't ok. Then you know it's going to be a long night. He's restless and you just cant find the reason why. My child is my daily bread, if he's sad I'm sad, if he eats I eat, if he has no appetite, I have no appetite, if he's happy, I'm happy. A mother's priority is always the well-being of her child.and if he isn't alright, you're not going to sleep for sure. The sleepless nights usually start with seizures. The pain I feel for my child when he has a seizure and there is nothing I can do. He looks into my eyes and you can see he is in pain and he is almost asking 'why is this happening to me' and you can't explain. All you can do is hold him close and shower...

I promised I would share this testimony with everyone I know and hope in some way it will touch your heart to take life more seriously, and be thankful for what we have; so here goes: On Friday February 13th 2015, a year ago today I was rushed 🚑 to Tema General Hospital for an emergency Surgery because I had intestinal obstruction, a ruptured meckel's diverticulum, and perforated intestines. The previous year I was always feeling faint and always thirsty. Little did I know that the passed year of my life, everything I ate was passing through the holes in my intestines and had gradually made my system gangrene. The doctors had wondered how I had survived this whole time. Not to forget I was also about 18wks pregnant. I had a NG tube shoved down my throat through my nose 👃🏽while vomiting throughout the process (they couldn't wait till I was sedated as my condition when I arrived at the hospital was almost passing out). I was told my son wouldn't make it through the surge...

Some days it's hard, and some days it's really hard. It doesn't get easy, anybody that tells you that is liar. Having a special needs child is like having twins, double the work, double the trouble 😊, double the attention, double the care, double the expenses, double the everything. Family may support, friends may support, but at a certain point in the day you are left all alone with your child and you have to deal. The devil is always lurking,oh yeh he's always watching from the background, waiting to see if you'll lose your patience, if you'll cry or give up, God is always there too watching for the same things, but His mission is to help; To encourage you, to console you, to catch your tears. If you think you will be satisfied with support from family and friends, I'm here to burst your bubble, they will support to some extent but they won't always be there and they certainly won't understand what you're going through the way Jesus does...

Right after getting married, I got pregnant almost immediately. In the beginning, I wish we had waited but God knows best and why I fell pregnant so quickly. I was very sick throughout the pregnancy, the usual morning sickness but lots of throwing up, sweating; I was always hungry and couldn't get myself to eat due to the nausea. I became very prayeful in my preganncy, I went to challenge bookshop in Accra and took my time to look for a devotional that would help me go through with it. I prayed a lot but I also visited the doctor a lot and everytime he would see me he would tell me what I was going through was very normal. They don't tell you, but when you're pregnant, you tend to dream a lot... a whole lot. It was actually an eye opener for me because what I would dream about someway somehow related to my present situation in life. One strange dream I had, was when i was praying to God to give me a strong healthy normal and special baby. Now how many times do you ge...