World Cerebral Palsy Day: Dedication to Special Needs Mamas!

 On this World Cerebral Palsy Day 6th October, I want to encourage all mothers of children with cerebral palsy to always have hope, think positive and never give-up!


To you that they told your child will not live for long,

to you that go in and out of hospitals trying to find the right treatment for your child,

to you that you're the first to diagnose your child before the doctor even opens his/her mouth 😂, (I'm guilty)

to you that when you're bathing, you constantly have to keep the door open and peep in to your child because he/she cannot be left alone so in case he/she has a seizure you can run out of the shower with soap all over your body,

to you that always have to explain to people how to hold your child because (s)he is different even if they get offended by it, (who cares?)

to you that some days nobody can hold your child because he's just not doing good and you don't want to take that risk of giving him to someone else,

to you that have to brave the day when you leave your child and go to work and all you can do is pray that he is in safe hands,

to you that the doctor said there is no cure and proper treatment for your child's condition yet you block your ears and smile because you know everything will be alright,

to you that you're the only one that can bath your child,

to you, that always have to ask whether your friend or you friend's child has a flu before they can come over beacuse you know your child's immune system just wouldn't cope if she/he were to catch one,

to you that when you go out and your kid isn't responsive to others you always have the patience to explain why,

to you that rush home from work at least once a week because something might be happening to your child,

to you that have to sleep light for the rest of your life and pray every night that God should wake you up should anything happen to your child,

To you that have become the intepreter: you're the only one that understands the sounds your kid makes when he/she wants something, because your child is non-verbal,

to you that spend a lot of time at therapy sessions to the extent that you've become a therapist yourself,

basically to you that mother with a special needs child that goes over and beyond for your child's well being!

Regardless of the fact that your child can't tell you they love you, the hugs and kisses and joy and time you share everyday with them is really enough! 😄😘😘

To us Special Mamas on the World Cerebral Palsy Day, you are remembered !

WE SEE YOU EVERYTHING YOU DO!

 Stay blessed! 

Indeed this job isn't easy and we get very little rest. Even when we get the rest we don't want to rest, we use it to do research for our babies. People don't seem to understand how exhausted we get from the caregiving. Not just the physical exhaustion but the emotional and mental one too. My friends who have two or three kids always want to compare my Giovanni with their situation. It is nowhere similar. At least your regular kids can walk, talk and play with themselves, they can pick up toys, they can play house or kitchen, they have imaginary friends when you are busy cooking or doing house chores, you can even go to the mall and probably buy anything from there for them to eat and chew on while shopping and that's their lunch. It's not like that with special needs kids; everything is planned, in most cases every food is measured, there is a routine that cannot really be broken,
 IT IS NOT THE SAME! :-)