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Showing posts from June, 2016

Randomness

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At 3 days old, Giovanni was diagnosed with two rare conditions: microcephaly and craniosynostosis after a CT scan. His sutures appeared closed and his head was abnormally small according to the doctors. And so this is where our journey began, of seeing doctor after doctor, specialist after specialist, trying to find exactly what was wrong with my baba. After seeing several doctors in Ghana, who confirmed what the CT scan showed, we raised money and flew to South Africa thinking we were going to do surgery to open up his skull, only to be told by the doctor something different. Something we weren't expecting at all. At 10 weeks old Giovanni had a MRI scan in Cape Town, South Africa and the doctor told us mysteriously that Giovanni did NOT have craniosynostis like we had thought but confirmed it would be more of a neurological problem that couldn't be corrected by surgery. After the trip to Cape Town, we came back to Ghana even more baffled about Giovanni. I knew something